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Leadership

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OFFICERS AND EXECUTIVE COMMITTEE (for 2021)

  • Ronald J. Bartek, President
    Friedreich’s Ataxia Research Alliance — Patient/Research Advocacy Group
  • Mary B. Dwight, Vice President
    Cystic Fibrosis Foundation — Patient/Research Advocacy Group
  • Wayne Pines, Immediate Past President
    APCO Worldwide — Individual Member
  • Kyle Kinner, Secretary/Treasurer
    The Pew Charitable Trusts — Patient/Research Advocacy Group
  • Alison Bodor, Member at Large
    American Frozen Foods Institute — Industry/Trade Association
  • Julie Ann Zawisza, Member at Large
    Merck — Company Group

BOARD OF DIRECTORS (for 2021)

  • Jeff Allen, Friends of Cancer Research
  • Ronald J. Bartek, Friedrich’s Ataxia Research Alliance
  • Alison Bodor, American Frozen Food Institute
  • Cynthia Bens, Personalized Medicine Coalition
  • Mary Dwight, Cystic Fibrosis Foundation
  • Cartier Esham, Biotechnology Innovation Organization
  • Thomas Gremillion, Consumer Federation of America
  • Emily Holubowich, American Heart Association
  • Darrel Jodrey, Johnson & Johnson
  • Sarah Killeen, AdvaMed
  • Kyle Kinner, The Pew Charitable Trusts
  • Tom Kraus, American Society for Health-System Pharmacists
  • Esther Krofah, FasterCures
  • Rich Moscicki, PhRMA
  • Nancy Myers, Catalyst Healthcare Consulting
  • Wayne Pines, APCO Worldwide
  • Colin Schwartz, Center for Science in the Public Interest
  • Kristin Stephenson, Muscular Dystrophy Association
  • Julie Anne Zawisza, Merck
  • Diana Zuckerman, The National Center for Health Research